Thursday, 4 November 2010

Epilepsy - I shouldn't care but I do!

As far as most things go The Boy just gets on and does them. There has never been a need to keep a special eye on things. Just a general awareness helps, for you never know when he's going to have a "Blank" as we call them. A moment when he is just not there.
However, as he gets older there are some things that we cannot be blase about and one of them is contact sports. Up until now it's not really been a problem apart from the time he whacked a friend in the mouth with his hockey stick and broke said friend's tooth in half. However, looking at them all galivanting on the pitch the other day, I'd say that  it wouldn't be unusual for any of them to do that sort of thing. I put it down to "could have hapened to anyone" rather than blaming it on The Boy's Absence Seizures.
Now  there is a problem for next term he's going to start playing Rugby. I like Rugby, it's a great game but for a 7 year old to be playing it as a contact sport rather than doing the Tag or Touch versions, they and their teachers will really need to be on the ball.
I have visions of the poor little mite having a blank in the middle of the game and stopping effectively becoming a static target for all and sundry to leap upon; it's not a pretty image but one that could so easily happen for it already does on the Hockey pitch. However on the hockey pitch the most that happens is he loses the ball but on the Rugby field - well, I've already said. 
So decisions have been made and he won't be playing Rugby next term. And although he seems fine with it I am not. I hate the idea that he suddenly can't do something because his epilepsy has yet to be controlled. And I am so cross that it is taking so long to sort him out. He has never been able to rid himself of the seizures, not one day goes by when he can concentrate properly. I am amazed at how well he copes and how it seems to affect him so little in himself but I know it is holding him back in school work, playing with friends and now on the sports field. I want him to be rid of it, I want him to have all the opportunites open to him, it's such a little thing isn't it. I mean it's not the end of the world if he doesn't play Rugby...

11 comments:

TheMadHouse said...

It must be so hard to have to make decisions like this. Sending you my thooughts nad I do hope that it becomes managed soon

Spencer Park said...

I know I've been emotional this week but you've started me crying again!

My father suffers from seizures that caused him real stress as a kid. The doctors helped him (I've never seen him have a seizure) and I really hope that they will help your lad!

Thanks for the lovely words on my blog.

Ladybird World Mother said...

So hard, Tattie. We all want our children to have every opportunity in life... how about he starts up something else? Totally different and absorbing. Can't think off the top of my head but there must be other exciting things which he would love... just a thought. It's always good to add something when one has to take something away. Hugs as ever. You are brilliant, but you know that. xx

Tattie Weasle said...

The Mad House - Thank you awaiting NHS appointment, won't hold breath though!
Spencer Park - I don't want to make you cry. It's a real pugger when your kids have problems and you don't so to speak. It's when you really wish you had a magic wand...
Ladybrid World Mother - You are so right! I will alos endeavour to be kinder to him and give him hugs: I was very mean to him this morning and I feel awful still...hopefully he's forgotten!

SmitoniusAndSonata said...

Is there an opening for him as team photographer ? Armed with a digital camera , he'd feel involved and the odd Blank wouldn't matter .

Tattie Weasle said...

SmitoniusAndSonata - what a great idea, keeps him involved until such a time as he can join in!

Lou said...

Oh so hard. Chin up girl. The photography thing sounds a really good idea.

Tattie Weasle said...

Lou - thank you, going to look at cameras for him for christmas!

Michelle said...

Love your blog! It came up on my Google Alerts today. Please check out www.purpleday.org when you have a chance. It is the international day for epilepsy awareness (March 26)and we'd love to have your support (and your son's support as well!).

We also have an Ambassador program you might be interested in! Please visit http://purpleday.org/ambassador.phpfor more information.

Thank you,

Michelle Caplan
Partnership Executive
Purple Day
www.purpleday.org

Tattie Weasle said...

Michelle - Just to say both The Boy and I are very interested and we will see what we can do. 26th is in the Diary!!!!

Mesina said...

Oh I feel his pain..... I suffer with JME Epilepsy, diagnosed when I was 16 and still a sufferer at age 33. Absence seizures are something I am very familiar with myself. I suppose being someone who has always had a bit of a limitation, I've gotten used to it. It's not nice and frustrating at times, but then I suppose we all have to adjust right?

Sounds like he's got all the support in the world to get through though...and it's great he still has some other sports he can continue to enjoy. Our quality of life isn't determined by the things we can't do, it's determined by the things we can overcome :)

Go on you know you want to...

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